Moral of my story- LISTEN TO YOUR MOM-INTUITION- My daughter was just discharged after 5 days in the children’s hospital. On Labor Day she came down with a few spots on her feet, then on the rest of her body within 2 hours. She went to bed and woke up with them even more wide-spread all over.
I can’t explain why I had a feeling initially that it wasn’t HAnd-Foot-and Mouth (HFM), but it was last Tuesday that I had that feeling. I called the pediatricians nurse line who said they don’t see kids with HFM & to treat the symptoms.
Tuesday night I still was uneasy because the spots didn’t match the photos I was seeing of HFM, I called the nurse line again and they said the same thing.
Wednesday morning she was so much worse, lethargic, and the spots had all turned to blisters from head to toe. By 10am I knew this was not normal and demanded for her to be seen. They got us in at 5pm.
Immediately upon walking in, the pediatrician called for two other pediatricians who all agreed we needed to go to the ER. We walked into the ER and were immediately put into isolation 30+ labs done, monitors everywhere. Turns out my daughter had a potentially life threatening reaction to a virus, one of her normal meds, or Tylenol (not sure which) called Stephens Johnson’s Syndrome.
Fast-Forward 5 days, we are headed home now. She is still going to be stuck in isolation at home for infection risk, and her skin is falling off in sheets where she had blisters (25% of her body).
PLEASE if something isn’t settling with you, push push push to have someone look into it. Our story turned out best case, but I hate to think that if I hadn’t pushed for her to be seen how badly it could have turned 😞
Hi there! I'm Caitlyn. I'm mom to three kiddos ages 7,5 & 2. My 7& 2 year olds were the two blessed with FPIES. My 7 year old is only (now) Acute to dairy, wheat, soy, and rice. The youngest is a hot mess with 12 safes, and a million fails plus a few IGE's to top it all off.
We appreciate your support!
© www.FPIESKitchen.com, 2018-2020. Unauthorized use and/or duplication of this material without express and written permission from this site’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to www.FPIESKitchen.com with appropriate and specific direction to the original content.
2.1 Our website contains general medical information.
2.2 The medical information is not advice and should not be treated as such.
3. No warranties
3.1 The medical information on our website is provided without any representations or warranties, express or implied.
3.2 Without limiting the scope of Section 3.1, we do not warrant or represent that the medical information on this website:
(a) will be constantly available, or available at all; or
(b) is true, accurate, complete, current or non-misleading.
4. Medical assistance
4.1 You must not rely on the information on our website as an alternative to medical advice from your doctor or other professional healthcare provider.
4.2 If you have any specific questions about any medical matter, you should consult your doctor or other professional healthcare provider.
4.3 If you think you may be suffering from any medical condition, you should seek immediate medical attention.
4.4 You should never delay seeking medical advice, disregard medical advice or discontinue medical treatment because of information on our website.
5. Interactive features
5.1 Our website includes interactive features that allow users to communicate with us.
5.2 You acknowledge that, because of the limited nature of communication through our website's interactive features, any assistance you may receive using any such features is likely to be incomplete and may even be misleading.
5.3 Any assistance you may receive using any our website's interactive features does not constitute specific advice and accordingly should not be relied upon without further independent confirmation.
6. Limits upon exclusions of liability
6.1 Nothing in this disclaimer will:
(a) limit or exclude any liability for death or personal injury resulting from negligence;
(b) limit or exclude any liability for fraud or fraudulent misrepresentation;
(c) limit any liabilities in any way that is not permitted under applicable law; or
(d) exclude any liabilities that may not be excluded under applicable law.